Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis

Author:

Girdwood Tyra C.,Kainz Kirsten,Silva Susan G.,Goralski Jennifer L.,de Ferris Maria E.Díaz-González,Lynn Mary R.,Dellon Elisabeth P.,Nasr Samya Z.,Uluer Ahmet,Toles Mark P.

Funder

Cystic Fibrosis Foundation

Robert Wood Johnson Foundation

Publisher

Elsevier BV

Reference42 articles.

1. 2022 National Survey of Children’s Health (NSCH) data query. Data Resource Center for Child and Adolescent Health supported by the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Accessed October 23, 2023. www.childhealthdata.org.

2. Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: current practices and research priorities;Lanzkron;J Clin Transl Sci,2018

3. 2022 Patient Registry Annual Data Report. Cystic Fibrosis Foundation. Updated in 2023. 〈https://www.cff.org/media/31216/download〉.

4. Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of the international depression epidemiological study across nine countries;Quittner;Thorax,2014

5. Flying the nest: a challenge for young adults with cystic fibrosis and their parents;Bregnballe;Patient Prefer Adherence,2017

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