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Data Re-Identification: Societal Safeguards

  • Published:2013-03 Issue:6123 Volume:339 Page:1032-1033
  • ISSN:0036-8075
  • Container-title:Science
  • language:en
  • Short-container-title:Science

Author:

Altman Russ B.1,Clayton Ellen Wright2,Kohane Isaac S.3,Malin Bradley A.4,Roden Dan M.5

Affiliation:

1. Department of Bioengineering, Stanford University, Stanford, CA 94305, USA.

2. Center for Biomedical Ethics and Society, Vanderbilt University, Nashville, TN 37232, USA.

3. Department of Pediatrics, Children's Hospital Boston, Boston, MA 02115, USA.

4. Department of Biomedical Informatics, Vanderbilt University, Nashville, TN 37232, USA.

5. Department of Medicine, Vanderbilt University, Nashville, TN 37232, USA.

Publisher

American Association for the Advancement of Science (AAAS)

Subject

Multidisciplinary

Reference3 articles.

1. El Emam K., Jonker E., Arbuckle L., Malin B., PLoS ONE, 6, e28071 (2011).

2. Jobling M. A., Trends Genet. 17, 353 (2001).

3. Sample I. Teenager finds sperm donor dad on Internet 2 November 2005; www.guardian.co.uk/science/2005/nov/03/genetics.news.

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1. Decentralised clinical trials: ethical opportunities and challenges;The Lancet Digital Health;2023-06

2. A scoping review of semantic integration of health data and information;International Journal of Medical Informatics;2022-09

3. Reflections on dynamic consent in biomedical research: the story so far;European Journal of Human Genetics;2020-11-28

4. Are Public Repository Requirements Exacerbating Lack of Diversity?;Trends in Genetics;2020-06

5. Genomic Privacy;Clinical Chemistry;2018-12-01
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