My views matter: what do service users and their families want from residential and in-patient learning disabilities services in Norfolk?

Abstract

Purpose An important finding of the Safeguarding Adults Review into events at Cawston Park was that the views of patients and their families were systematically ignored by the hospital. The purpose of this paper is to report on a review of people’s experiences of residential and secure in-patient services in Norfolk for those with learning disabilities and autistic people. It discusses overall reported levels of satisfaction, how well people and their families felt they were listened to by services and what people valued most in services. Design/methodology/approach The main research tools were visits to services to talk to people and observe them receiving care, along with listening sessions outside homes and interviews with relatives. Findings Most people spoken to were happy with how they were listened to, but there is room for improvement. People particularly valued connections with staff based on reciprocity, long-term relationships and, for some, family-like relationships, and were unhappy when these were inconsistent or absent. People also enjoyed the opportunity to develop relationships with people outside their service, and especially with non-disabled people, something that was rare for most people. Relatives appreciated transparency of communication and openness to negotiation in home managers, especially when problems or disagreements arose. Originality/value The findings suggest that the severe problems with listening at Cawston Park are not more widespread across the sector in Norfolk. However, progress is needed to improve the consistency of listening across services and to develop services informed by what people value most in services around quality relationships, communication and social inclusion.