The Investigation of Relationship between Functional Mobility Levels of Children with Chronic Disability and Caregivers’ Quality of Life-Reference-Cited by-全球学者库

The Investigation of Relationship between Functional Mobility Levels of Children with Chronic Disability and Caregivers’ Quality of Life

Published:2023-06-27 Issue:2 Volume:6 Page:218-224
ISSN:2645-9094
Container-title:International Journal of Disabilities Sports and Health Sciences
language:
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Author:

AHMADOV Ramil¹^ORCID,DEMİR Nazlı¹^ORCID,KURT Merve²^ORCID,TARSUSLU Tülay³^ORCID

Affiliation:

1. DOKUZ EYLUL UNIVERSITY, INSTITUTE OF HEALTH SCIENCES

2. IZMIR KATIP CELEBI UNIVERSITY, FACULTY OF HEALTH SCIENCES, DEPARTMENT OF PHYSICAL THERAPY AND REHABILITATION, PHYSIOTHERAPY AND REHABILITATION PR.

3. DOKUZ EYLÜL ÜNİVERSİTESİ, FİZİK TEDAVİ VE REHABİLİTASYON YÜKSEKOKULU, FİZYOTERAPİ VE REHABİLİTASYON BÖLÜMÜ, NÖROLOJİK FİZYOTERAPİ-REHABİLİTASYON ANABİLİM DALI

Abstract

Purpose: This study aims to look at the relationship between carers' quality of life and the functional mobility levels of children with chronic disabilities.Methods: The study included 30 children (22 boys, 8 girls) with chronic disabilities and their caregivers. The socio-demographic characteristics of the children and caregivers were collected.Caregivers' quality of life was evaluated with the Adult Carer Quality of Life Questionnaire (AC-QoL), and children’s functional mobility was evaluated with the mobility subscale of the Pediatric Evaluation Of Disability Inventory (PEDI-Mobility). Results: The age of the children included in the study was 7.0 (5.0-12.0) years and the age of their caregivers was 38.00 (32.75-41.25) years. The AC-QoL score of caregivers was 85.00 (72.00-93.50) out of a total of 120 points, and the PEDI-Mobility score was 33.00 (3.75-53.00) out of a total of 58 points. In the correlation analysis, no significant correlation was found between the PEDI-Mobility total score and the AC-QoL total score (p>0.05).However, there was a negative correlation between the PEDI-Mobility total score and the AC-QoL “ability to care” subscale score(r= -0.403; p=0.027). Conclusion: According to the results of the study, no relationship was found between the functional levels of children and the quality of life of their caregivers. Studies with a larger sample size and consideration of aspects including sociocultural level, economic considerations, and health services that may affect the quality of life of families are regarded to be necessary in order to achieve more conclusive findings on this subject.

Publisher

International Journal of Disabilities Sports and Health Sciences

Subject

Physical Therapy, Sports Therapy and Rehabilitation,Life-span and Life-course Studies,Health (social science),Orthopedics and Sports Medicine

Reference29 articles.

1. Barutcu, A., Barutcu, S., Kolkiran, S., & Ozdener, F. (2021). Evaluation of anxiety, depression and burden on caregivers of children with cerebral palsy. Developmental neurorehabilitation, 24(8), 555-560.

2. Bourke‐Taylor, H., Howie, L., Law, M., & Pallant, J. F. (2012). Self‐reported mental health of mothers with a school‐aged child with a disability in Victoria: A mixed method study. Journal of paediatrics and child health, 48(2), 153-159.

3. Bumin, G., Günal, A., & Tükel, Ş. (2008). Anxiety, depression and quality of life in mothers of disabled children. Journal of SDU Faculty of Medicine, 15(1), 6-11.

4. Byrne, M. B., Hurley, D. A., Daly, L., & Cunningham, C. G. (2010). Health status of caregivers of children with cerebral palsy. Child: care, health and development, 36(5), 696-702.

5. Caicedo, C. (2014). Families with special needs children: family health, functioning, and care burden. Journal of the American Psychiatric Nurses Association, 20(6), 398-407.