Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child-Reference-Cited by-同舟云学术

Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child

Published:2023-07-05 Issue: Volume: Page:1-23
ISSN:0887-0446
Container-title:Psychology & Health
language:en
Short-container-title:Psychology & Health

Author:

McCray Gareth¹,Hope Holly F.²,Glasscoe Claire³,Hill Jonathan⁴,Quittner Alexandra⁵,Southern Kevin W.³,Lancaster Gillian A.¹

Affiliation:

1. School of Medicine, Keele University, Keele, UK

2. Division of Psychology and Mental Health, Centre for Women’s Mental Health, University of Manchester, Manchester, UK

3. Department of Women’s and Children’s Health, Institute of Translational Medicine, University of Liverpool, Alder Hey Children’s NHS Foundation Trust, Liverpool, UK

4. School of Psychology and Clinical Language Sciences, Reading University, Reading, UK

5. Behavioral Health Systems Research, Miami, FL, USA

Funder

NIHR RfPB

Alder Hey Children’s NHS Foundation Trust R&D Fund

Publisher

Informa UK Limited

Subject

Public Health, Environmental and Occupational Health,Applied Psychology,Management Science and Operations Research,Mechanical Engineering,Energy Engineering and Power Technology

Link

https://www.tandfonline.com/doi/pdf/10.1080/08870446.2023.2231489

Reference65 articles.

1. Suicide attempts in adolescents with cystic fibrosis on Elexacaftor/Tezacaftor/Ivacaftor therapy

2. Bhatnagar, R., Bhardwaj, N., Linnane, B., Herzig, M., Chroinin, M. Ni, Mullane, D., Cox, D., McNally, P., Javadpour, S., Elnazir, B., Greally, P., Kirwan, L., Lancaster, G., Glasscoe, C., Segurado, R., Southern, K. W., Fitzpatrick, P. (2023). The challenge of living with cystic fibrosis - short form - challenges experienced by parents/caregivers of children with Cystic Fibrosis in Ireland: The Irish Comparative Outcomes study (ICOS). Journal of Cystic Fibrosis, 22(2), S41. https://doi.org/10.1016/S1569-1993(23)00306-5

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