Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa-Reference-Cited by-同舟云学术

Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa

Published:2024-01-18 Issue: Volume: Page:1-14
ISSN:2329-4515
Container-title:AJOB Empirical Bioethics
language:en
Short-container-title:AJOB Empirical Bioethics

Author:

Oladayo Abimbola M.¹²^ORCID,Prochaska Sydney³,Busch Tamara²,Adeyemo Wasiu L.⁴,Gowans Lord J. J.⁵,Eshete Mekonen⁶,Awotoye Waheed¹²,Sule Veronica⁷,Alade Azeez¹²,Adeyemo Adebowale A.⁸,Mossey Peter A.⁹,Prince Anya¹⁰,Murray Jeffrey C.¹¹,Butali Azeez¹²

Affiliation:

1. Department Oral Pathology, Radiology and Medicine, College of Dentistry, University of Iowa, Iowa City, Iowa, USA

2. Iowa Institute of Oral Health Research, University of Iowa, Iowa City, Iowa, USA

3. Department of Global Health, College of Public Health, University of Iowa, Iowa City, Iowa, USA

4. Department of Oral and Maxillofacial Surgery, University of Lagos, Lagos, Nigeria

5. Department of Biochemistry and Biotechnology, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana

6. Department of Surgery, School of Medicine, Addis Ababa University, Addis Ababa, Ethiopia

7. Department of Operative Dentistry, College of Dentistry, University of Iowa, Iowa City, Iowa, USA

8. National Human Genomic Research Institute, Bethesda, MD, USA

9. Department of Orthodontics, University of Dundee, Dundee, UK

10. College of Law, University of Iowa, Iowa City, Iowa, USA

11. Department of Pediatrics, University of Iowa, Iowa City, Iowa, USA

Funder

National Institutes of Health

National Institute of Dental and Craniofacial Research (NIDCR)/Fogarty International Center

National Institute of Dental and Craniofacial Research T90 Training Grant

Publisher

Informa UK Limited

Subject

Health Policy,Philosophy,Health (social science)

Link

https://www.tandfonline.com/doi/pdf/10.1080/23294515.2024.2302993

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2. ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing

3. Identification of Causative Variants Contributing to Nonsyndromic Orofacial Clefts Using Whole-Exome Sequencing in a Saudi Family

4. To disclose, or not to disclose? Perspectives of clinical genomics professionals toward returning incidental findings from genomic research

5. Informed consent for return of incidental findings in genomic research