Patient-Reported Outcomes and Medical Provider Satisfaction Among Adult and Pediatric Ataxia-Telangiectasia Patients
Author:
Publisher
Springer Science and Business Media LLC
Subject
Immunology,Immunology and Allergy
Link
https://link.springer.com/content/pdf/10.1007/s10875-024-01652-6.pdf
Reference24 articles.
1. Petley E, Yule A, Alexander S, Ojha S, Whitehouse WP. The natural history of ataxia-telangiectasia (A-T): a systematic review. Plos ONE. 2022;17(3):e0264177. https://doi.org/10.1371/journal.pone.0264177.
2. van Os NJH, et al. Classic ataxia-telangiectasia: the phenotype of long-term survivors. J Neurol. 2020;267(3):830–7. https://doi.org/10.1007/s00415-019-09641-1.
3. McGlashan HL, et al. Quality of life and neurological disability in children and young people with ataxia telangiectasia. Eur J Paediatr Neurol. 2022;40:34–9. https://doi.org/10.1016/j.ejpn.2022.07.004.
4. Félix E, Gimenes AC, Costa-Carvalho BT. Effects of inspiratory muscle training on lung volumes, respiratory muscle strength, and quality of life in patients with ataxia telangiectasia. Pediatr Pulmonol. 2014;49(3):238–44. https://doi.org/10.1002/ppul.22828.
5. Robinson CA. Trust, health care relationships, and chronic illness. Glob Qual Nurs Res. 2016;3:2333393616664823. https://doi.org/10.1177/2333393616664823.
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