Improving follow up after predictive testing in Huntington’s disease: evaluating a genetic counselling narrative group session
Author:
Funder
University of Manchester
Publisher
Springer Science and Business Media LLC
Subject
Genetics (clinical),Public Health, Environmental and Occupational Health,Epidemiology
Link
http://link.springer.com/content/pdf/10.1007/s12687-019-00416-9.pdf
Reference52 articles.
1. A’Campo LE, Spliethoff-Kamminga NG, Roos RA (2012) The patient education program for Huntington’s disease (PEP-HD). J Huntingtons Dis 1:47–56. https://doi.org/10.3233/JHD-2012-120002
2. Almqvist EW, Bloch M, Brinkman R, Craufurd D, Hayden MR (1999) A worldwide assessment of the frequency of suicide, suicide attempts, or psychiatric hospitalization after predictive testing for Huntington disease. Am J Hum Genet 64:1293–1304
3. Almqvist EW, Brinkman RR, Wiggins S, Hayden MR (2003) Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington’s disease. Clin Genet 64:300–309
4. Andersson PL, Petersén Å, Graff C, Edberg AK (2016) Ethical aspects of a predictive test for Huntington’s disease: a long term perspective. Nurs Ethics 23:565–575. https://doi.org/10.1177/0969733015576356
5. Barnard C (1994) Resiliency: a shift in our perception. Am J Fam Ther 22:135–144
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