Knowledge and Attitudes of Clinical Trials among Patients with Rare Diseases and the Guardians in China-Reference-Cited by-同舟云学术

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Knowledge and Attitudes of Clinical Trials among Patients with Rare Diseases and the Guardians in China

Published:2023-09-18 Issue:1 Volume:58 Page:53-62
ISSN:2168-4790
Container-title:Therapeutic Innovation & Regulatory Science
language:en
Short-container-title:Ther Innov Regul Sci

Author:

Xiang Ziling,Jiang Hui,Jiang Wengao,Wang Yali,Zheng Hang

Publisher

Springer Science and Business Media LLC

Subject

Pharmacology (medical),Public Health, Environmental and Occupational Health,Pharmacology, Toxicology and Pharmaceutics (miscellaneous)

Link

https://link.springer.com/content/pdf/10.1007/s43441-023-00571-9.pdf

Reference43 articles.

1. Aartsma-Rus A, Dooms M, Le Cam Y, Od Expert G, Copenhagen E. Orphan medicine incentives: how to address the unmet needs of rare disease patients by optimizing the European orphan medicinal product landscape guiding principles and policy proposals by the European Expert Group for Orphan Drug Incentives (OD Expert Group). Front Pharmacol. 2021. https://doi.org/10.3389/fphar.2021.744532

2. McCray AT, LeBlanc K, Undiagnosed DN. Patients as partners in rare disease diagnosis and research. Yale J Biol Med. 2021;94(4):687–92.

3. Wakap SN, Lambert DM, Olry A, et al. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. Eur J Hum Genet. 2020;28(2):165–173. https://doi.org/10.1038/s41431-019-0508-0.

4. He JJ, Song PP, Kang Q, et al. Overview on social security system of rare diseases in China. Biosci Trends. 2019;13(4):314–23. https://doi.org/10.5582/bst.2019.01209.

5. Liu P, Gong MC, Li J, et al. Innovation in informatics to improve clinical care and drug accessibility for rare diseases in China. Front Pharmacol. 2021. https://doi.org/10.3389/fphar.2021.719415.

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