“Don’t talk to me like I am an illness”: exploring patients’ needs using the communication passport in an eating disorder service

Abstract

Summary Purpose Social challenges are common in patients with eating disorders (ED). The presence of autistic characteristics often exacerbates social difficulties within this group, potentially affecting treatment outcomes. This study investigates the communication preferences, challenges, dislikes, and support needs of patients with ED, both with and without autistic traits, using a communication passport in a national inpatient ED service. Methods An explorative qualitative analysis of 38 completed communication passports was conducted to investigate patients’ communication preferences, sensory needs, struggles and dislikes, and areas of support required, paying particular attention to the distinct needs of patients with high levels of autistic traits. Results The communication passport provided valuable insights into patients’ communication preferences, sensory sensitivities, challenges, and support needed. Patients also used the passports to share information about their strengths, personal identity, and life beyond the hospital. Conclusion The communication passport fosters a deeper understanding of patients’ needs and may support clinicians in care planning and communication strategies tailored to each patient’s needs. Regular evaluation and updates are warranted to ensure its usability and accessibility by the wider care team.