MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer

Author:

Snaman Jennifer M.ORCID,Helton Gabrielle,Holder Rachel L.,Wittenberg Eve,Revette Anna,Tulsky James A.,Baker Justin N.,Wolfe Joanne

Funder

Pedals4Pediatrics

Boston Children’s Hospital Office of Faculty Development Faculty Career Development Fellowship

National Palliative Care Research Center

Publisher

Springer Science and Business Media LLC

Subject

Oncology

Reference19 articles.

1. Howlader N NA, Krapcho M, Garshell J, Miller D, Alrekruse SF, Kosary CL, Yu M, Ruhl J, Tatlovich Z, Mariotto A, Lewis DR, Chen HS, Feuer EJ, Cronin KA (eds). SEER Cancer Statistics Review, 1975-2011, National Cancer Institute. Bethesda, MD, http://seer.cancer.gov/csr/1975_2011/, based on November 2013 SEER data submission, posted to the SEER web site, April 2014

2. Snaman JM, Kaye EC, Lu JJ, Sykes A, Baker JN (2017) Palliative care involvement is associated with less intensive end-of-life care in adolescent and young adult oncology patients. J Palliat Med 20(5):509–516. https://doi.org/10.1089/jpm.2016.0451

3. Adamson PC (2015) Improving the outcome for children with cancer: development of targeted new agents. CA Cancer J Clin 65(3):212–220. https://doi.org/10.3322/caac.21273

4. Gaston CM, Mitchell G (2005) Information giving and decision-making in patients with advanced cancer: a systematic review. Soc Sci Med 61(10):2252–2264. https://doi.org/10.1016/j.socscimed.2005.04.015

5. Orme B (2010) Getting started with conjoint analysis: strategies for product design and pricing research. Fourth Edition edn. Research Publishers LLC., Madison, Wisconsin

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