Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait-Reference-Cited by-同舟云学术

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Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait

Published:2021-11-22 Issue: Volume: Page:
ISSN:1058-0468
Container-title:Journal of Assisted Reproduction and Genetics
language:en
Short-container-title:J Assist Reprod Genet

Author:

Early Macy L.,Strodel Rachel J.,Lake Isabel V.,Ruddy Jake A.,Saba James A.,Singh Sajya M.,Lanzkron Sophie,Mack Jennifer W.,Meier Emily R.,Christianson Mindy S.,Pecker Lydia H.

Funder

American Society of Hematology

National Cancer Institute

National Heart, Lung, and Blood Institute

Publisher

Springer Science and Business Media LLC

Subject

Genetics (clinical),Developmental Biology,Obstetrics and Gynecology,Genetics,Reproductive Medicine,General Medicine

Link

https://link.springer.com/content/pdf/10.1007/s10815-021-02358-z.pdf

Reference42 articles.

1. Pecker LH, Naik RP. The current state of sickle cell trait: implications for reproductive and genetic counseling. Blood. 2018;132:2331–8.

2. Dreesen J, Destouni A, Kourlaba G, et al. Evaluation of PCR-based preimplantation genetic diagnosis applied to monogenic diseases: a collaborative ESHRE PGD consortium study. Eur J Hum Genet. 2014;22:1012. https://doi.org/10.1038/EJHG.2013.277.

3. Gallo AM, Wilkie D, Suarez M, et al. Reproductive decisions in people with sickle cell disease or sickle cell trait. West J Nurs Res. 2010;32:1073–90. https://doi.org/10.1177/0193945910371482.

4. Darbari I, O’Brien JE, Hardy SJ, et al. Views of parents of children with sickle cell disease on pre-implantation genetic diagnosis. Pediatr Blood Cancer. 2018;65:e27102. https://doi.org/10.1002/pbc.27102.

5. Schultz CL, Tchume-Johnson T, Jackson T, et al. Reproductive intentions in mothers of young children with sickle cell disease. Pediatr Blood Cancer. 2020;67(5):e28227. https://doi.org/10.1002/pbc.28227.

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2. Developing, optimizing, and evaluating patient infographics for diagnosing cardiac amyloidosis;PEC Innovation;2023-12

3. Knowledge of fertility and perception of fertility treatment among adults with sickle cell disease (KNOW FERTILITY);Frontiers in Global Women's Health;2023-06-08

4. Family planning needs of young adults with sickle cell disease;eJHaem;2023-05-17

5. Desire for biological parenthood and patient counseling on the risk of infertility among adolescents and adults with hemoglobinopathies;Pediatric Blood & Cancer;2023-04-14

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